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    "Well the Future, that is Difficult": a hermeneutic phenomenological analysis exploring the maternal experience of parenting a young adult with a developmental disability

    Thackeray, L.A. and Eatough, Virginia (2015) "Well the Future, that is Difficult": a hermeneutic phenomenological analysis exploring the maternal experience of parenting a young adult with a developmental disability. Journal of Applied Research in Intellectual Disabilities 28 (4), pp. 265-275. ISSN 1360-2322.

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    Abstract

    - Background: The predominant focus of extant literature exploring maternal experience of developmental disability has been stress, adaptation, efficacy of interventions and the burden of care. Most studies involve mothers of children, with scant attention given to what life is like later. This study qualitatively explores the experience of mothers of young adults (aged 19–28). - Materials and methods: Semi-structured interviews conducted with six women aged 48–60 were transcribed and analysed using interpretative phenomenological analysis. - Results: Three themes illustrate how mothers are confronted with their adult children's continuing need for support and how a lack of trust in social care creates anxiety about the future, increasing awareness of mortality. - Conclusions: Vulnerability represents a useful concept for understanding these findings theoretically. Galvin & Todres’ (2013) conceptual framework for the humanization of care provides the opportunity to prioritize the needs of individuals by highlighting dimensions of existence which confer meaning.

    Metadata

    Item Type: Article
    Additional Information: This is the peer reviewed version of the article, which has been published in final form at http://dx.doi.org/10.1111/jar.12126. This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving'.
    Keyword(s) / Subject(s): developmental disabilities, interpretative phenomenological analysis, mothers, young adults
    School: Birkbeck Schools and Departments > School of Science > Psychological Sciences
    Depositing User: Virginia Eatough
    Date Deposited: 30 Oct 2014 09:02
    Last Modified: 11 Oct 2016 15:27
    URI: http://eprints.bbk.ac.uk/id/eprint/10820

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