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    Exploring views on satisfaction with life in young children with chronic illness: an innovative approach to the collection of self-report data from children under 11

    Christie, D. and Romano, G. and Barnes, Jacqueline and Madge, N. and Nicholas, D.B. and Koot, H.M. and Armstrong, D.F. and Shevlin, M. and Kantaris, X. and Khatun, H. and Sutcliffe, A. (2012) Exploring views on satisfaction with life in young children with chronic illness: an innovative approach to the collection of self-report data from children under 11. Clinical Child Psychology and Psychiatry 17 (1), pp. 5-15. ISSN 1359-1045.

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    Abstract

    The objective of this study was to explore young children’s views on the impact of chronic illness on their life in order to inform future development of a patient-based self-report health outcome measure. We describe an approach to facilitating self-report views from young children with chronic illness. A board game was designed in order to obtain qualitative data from 39 children with a range of chronic illness conditions and 38 healthy controls ranging in age from 3 to 11 years. The format was effective in engaging young children in a self-report process of determining satisfaction with life and identified nine domains. The board game enabled children aged 5–11 years with chronic illness to describe the effects of living with illness on home, family, friends, school and life in general. It generated direct, non-interpreted material from children who, because of their age, may have been considered unable or limited their ability to discuss and describe how they feel. Obtaining this information for children aged 4 and under continues to be a challenge.

    Metadata

    Item Type: Article
    Keyword(s) / Subject(s): children, chronic illness, focus groups, quality of life
    School: Birkbeck Schools and Departments > School of Science > Psychological Sciences
    Research Centre: Children, Families and Social Issues, Institute for the Study of
    Depositing User: Administrator
    Date Deposited: 08 Nov 2012 13:38
    Last Modified: 05 Dec 2016 11:52
    URI: http://eprints.bbk.ac.uk/id/eprint/5619

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