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    Waiting for a kidney from a deceased donor: an interpretative phenomenological analysis

    Spiers, Johanna and Smith, Jonathan A. (2016) Waiting for a kidney from a deceased donor: an interpretative phenomenological analysis. Psychology, Health and Medicine 21 (7), pp. 836-844. ISSN 1354-8506.

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    Abstract

    Demand for kidneys from deceased donors far outstrips supply. Despite this, there appears to be little research that focuses solely on the experience of waiting for a kidney from a deceased donor. This study uses the qualitative methodology Interpretative Phenomenological Analysis (IPA) to explore the lives of 10 people on the transplant list, with the aims of illuminating the potential psychological challenges those on the list may face during this time, and providing information to help clinicians more fully support such people in the future. Two themes connected to the experience of waiting – adjustment to the uncertainty of waiting and thinking about receiving a kidney from a living donor – are presented here. Participants describe a sense of confusion and uncertainty around life on the list, and discuss their strategies for dealing with this. Novel complexities around the ambiguous challenge of receiving an organ from a deceased donor are revealed. It is recommended that healthcare teams provide a forum for this patient group to work through these feelings of confusion and ambiguity.

    Metadata

    Item Type: Article
    Additional Information: “This is an Accepted Manuscript of an article published by Taylor & Francis, available online: http://wwww.tandfonline.com/10.1080/13548506.2015.1112415
    Keyword(s) / Subject(s): Deceased renal donor recipients, ESRD, phenomenology, renal failure, waiting list
    School: Birkbeck Faculties and Schools > Faculty of Science > School of Psychological Sciences
    Depositing User: Jonathan Smith
    Date Deposited: 30 Nov 2015 14:14
    Last Modified: 02 Aug 2023 17:19
    URI: https://eprints.bbk.ac.uk/id/eprint/13133

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