Kamaara, E. and Kong, Camillia and Campbell, M. (2020) Prioritising African perspectives in Psychiatric Genomics Research: issues of translation and informed consent. Developing World Bioethics 20 (3), pp. 139-149. ISSN 1471-8731.
|
Text
29339.pdf - Author's Accepted Manuscript Download (288kB) | Preview |
Abstract
Psychiatric genomics research with African populations comes with a range of practical challenges around translation of psychiatric genomics research concepts, procedures, and nosology. These challenges raise deep ethical issues particularly around legitimacy of informed consent, a core foundation of research ethics. Through a consideration of the constitutive function of language, the paper problematises like-for-like, designative translations which often involve the ‘indigenization’ of English terms or use of metaphors which misrepresent the risks and benefits of research. This paper argues that effective translation of psychiatric genomics research terminology in African contexts demands substantive engagement with African conceptual schemas and values. In developing attenuated forms of translational thinking, researchers may recognise the deeper motivational reasons behind participation in research, highlighting the possibility that such reasons may depart from the original meaning implied within informed consent forms. These translational issues might be ameliorated with a critical re-examination of how researchers develop and present protocols to institutional ethics review boards.
Metadata
| Item Type: | Article |
|---|---|
| Additional Information: | This is the peer reviewed version of the article, which has been published in final form at the link above. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving. |
| School: | Birkbeck Faculties and Schools > Faculty of Humanities and Social Sciences > School of Social Sciences |
| Research Centres and Institutes: | Crime & Justice Policy Research, Institute for |
| Depositing User: | Camillia Kong |
| Date Deposited: | 08 Oct 2019 11:28 |
| Last Modified: | 02 Aug 2023 17:54 |
| URI: | https://eprints.bbk.ac.uk/id/eprint/29339 |
Statistics
Additional statistics are available via IRStats2.
Archive Staff Only (login required)
