BIROn - Birkbeck Institutional Research Online

    Prioritising African perspectives in Psychiatric Genomics Research: issues of translation and informed consent

    Kamaara, E. and Kong, Camillia and Campbell, M. (2020) Prioritising African perspectives in Psychiatric Genomics Research: issues of translation and informed consent. Developing World Bioethics 20 (3), pp. 139-149. ISSN 1471-8731.

    29339.pdf - Author's Accepted Manuscript

    Download (288kB) | Preview


    Psychiatric genomics research with African populations comes with a range of practical challenges around translation of psychiatric genomics research concepts, procedures, and nosology. These challenges raise deep ethical issues particularly around legitimacy of informed consent, a core foundation of research ethics. Through a consideration of the constitutive function of language, the paper problematises like-for-like, designative translations which often involve the ‘indigenization’ of English terms or use of metaphors which misrepresent the risks and benefits of research. This paper argues that effective translation of psychiatric genomics research terminology in African contexts demands substantive engagement with African conceptual schemas and values. In developing attenuated forms of translational thinking, researchers may recognise the deeper motivational reasons behind participation in research, highlighting the possibility that such reasons may depart from the original meaning implied within informed consent forms. These translational issues might be ameliorated with a critical re-examination of how researchers develop and present protocols to institutional ethics review boards.


    Item Type: Article
    Additional Information: This is the peer reviewed version of the article, which has been published in final form at the link above. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
    School: Birkbeck Faculties and Schools > Faculty of Humanities and Social Sciences > School of Social Sciences
    Research Centres and Institutes: Crime & Justice Policy Research, Institute for
    Depositing User: Camillia Kong
    Date Deposited: 08 Oct 2019 11:28
    Last Modified: 02 Aug 2023 17:54


    Activity Overview
    6 month trend
    6 month trend

    Additional statistics are available via IRStats2.

    Archive Staff Only (login required)

    Edit/View Item Edit/View Item