Smith, Jonathan A. and Stephenson, M. and Jacobs, C. and Quarrell, O. (2013) Doing the right thing for one's children: deciding whether to take the genetic test for Huntington's disease as a moral dilemma. Clinical Genetics 83 (5), pp. 417-421. ISSN 0009-9163.
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Abstract
This is a qualitative examination of candidates’ decision-making in relation to the genetic test for Huntington's disease (HD). Semi-structured interviews were conducted with nine participants who were asked about factors influencing their decision whether to take up predictive genetic testing. Transcripts of interviews were subjected to interpretative phenomenological analysis to elicit emergent themes. A key factor for participants was to do the right thing for their children. Interestingly this factor presents a moral dilemma to participants and can direct them either towards or away from testing. This paper offers a detailed examination of how participants think through this dilemma.
Metadata
| Item Type: | Article |
|---|---|
| Additional Information: | The definitive version is available at www3.interscience.wiley.com |
| Keyword(s) / Subject(s): | Children, decision-making, genetic test, Huntington's disease, qualitative, moral dilemma |
| School: | Birkbeck Faculties and Schools > Faculty of Science > School of Psychological Sciences |
| Depositing User: | Administrator |
| Date Deposited: | 27 Feb 2013 11:30 |
| Last Modified: | 02 Aug 2023 17:02 |
| URI: | https://eprints.bbk.ac.uk/id/eprint/6171 |
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