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    Doing the right thing for one's children: deciding whether to take the genetic test for Huntington's disease as a moral dilemma

    Smith, Jonathan A. and Stephenson, M. and Jacobs, C. and Quarrell, O. (2013) Doing the right thing for one's children: deciding whether to take the genetic test for Huntington's disease as a moral dilemma. Clinical Genetics 83 (5), pp. 417-421. ISSN 0009-9163.

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    Abstract

    This is a qualitative examination of candidates’ decision-making in relation to the genetic test for Huntington's disease (HD). Semi-structured interviews were conducted with nine participants who were asked about factors influencing their decision whether to take up predictive genetic testing. Transcripts of interviews were subjected to interpretative phenomenological analysis to elicit emergent themes. A key factor for participants was to do the right thing for their children. Interestingly this factor presents a moral dilemma to participants and can direct them either towards or away from testing. This paper offers a detailed examination of how participants think through this dilemma.

    Metadata

    Item Type: Article
    Additional Information: The definitive version is available at www3.interscience.wiley.com
    Keyword(s) / Subject(s): Children, decision-making, genetic test, Huntington's disease, qualitative, moral dilemma
    School: School of Science > Psychological Sciences
    Depositing User: Administrator
    Date Deposited: 27 Feb 2013 11:30
    Last Modified: 09 Feb 2021 23:43
    URI: https://eprints.bbk.ac.uk/id/eprint/6171

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